Taylor's Tale raises funds for research and promotes public awareness of Batten disease. We are a non-profit, tax-exempt entity pursuant to Section 501(c)(3).

Our organization was originally founded by a group of dedicated volunteers in early 2007. For two years, we raised funds for the Batten Disease Support and Research Association (BDSRA). In January 2009, Taylor’s Tale was granted non-profit status.

Our Mission

Taylor's Tale was inspired by Taylor King, our much-loved daughter, sister and friend who was diagnosed with Batten disease in 2006.

The mission of Taylor's Tale is to provide funding for Batten disease research and promote awareness of this neurodegenerative disorder and the devastating impact it has on the children it affects.

Taylor's Tale supports research regarding all forms of Batten disease. Proposals must be built upon a "bench to bedside" philosophy; in other words, they must translate to human clinical trial.

Why Taylor's Tale?

All children have dreams. Some dream of becoming astronauts and exploring outer space. Some envision careers as baseball players or firefighters. Others want to be doctors or teachers. Taylor King, a girl who loves princesses, sparkly jewelry and the color pink, dreams of becoming a pop star or fashion designer. She loves to sing. She believes in fairy tales.

Taylor's courage inspired us to fight for a cure for Batten disease. We are writing her story because we believe that it will help us save children like her. Every child is entitled to dream; every child's story should be a fairy tale. And Taylor's Tale is not just Taylor's story anymore; rather, it is the universal story of all children. Because nothing should stand in the way of a dream.

Download the Taylor's Tale brochure

Watch the Taylor's Tale video