|
Links
Many of these links will direct you to sites that are
rich with information on Batten Disease and current research. Others will introduce you to children who, like Taylor, are
fighting for their lives.
Batten Disease Support and Research Association (BDSRA)
National Institute of Neurological Disorders and Stroke (NINDS)
National Institutes of Health (NIH)
Batten Disease Diagnostic and Clinical Research Center (David Pearce)
GeneReviews
National Tay-Sachs and Allied Diseases Association (NTSAD)
NORD: The National Organization for Rare Disorders
Sandra Hofmann, M.D., Ph.D.
The Davidson Laboratory (Beverly Davidson)
Mark S. Sands, Ph.D.
Center for Advanced Biotechnology and Medicine (Peter Lobel)
The Jackson Laboratory
Mendelian Inheritance in Man Database
Faces of Batten Disease
Batten's Angels: Brandon & Jeremy Hawkins
Nathan's Battle
Drew's Hope
Connor's Battle
Garrett's Wings
Blake's Purpose
Nick's Battle
Hayden's Hope
**We are not responsible for the content
found on any of the links listed above. They are included because we feel that they provide information that could prove to
be useful or relevant to our cause.**
|
