Tonight marks the two-year anniversary of Chapter One, Taylor's Tale's first fundraiser and the evening my family first got up in front of a room and told our story. That night, we raised nearly $40,000 for the Batten Disease Support and Research Association (BDSRA), all from a room of over 100 friends and family. That night, we were the Taylor's Tale steering committee. The King family was a family crying out for help, a family that was still trying to understand the horrible diagnosis their youngest member had received just over six months earlier. Though we may "understand" it now, we will never "understand" it in a way that allows us to fully accept the fact that it exists.

That night, Taylor was an eight-year-old with faltering night vision who struggled with third grade math. She was a beautiful little girl with long honey blonde hair who looked forward to the summer and played her Cheetah Girls CDs until the lyrics were well-known to us all.

Today, we are Taylor's Tale: a group that has, through BDSRA, funded three research projects; a group that has since applied for and received 501(c)(3) status as a nonprofit, tax-exempt organization; a group that stands before the blank pages of the part of the story that has yet to be written.

Today, Taylor is a 10-year-old who is blind and does not receive math lessons at all. Math is the one universal language, but since it disappeared from her life, she has learned another language: that of those who are not blessed with the gift of sight, that which is written in Braille but illustrated in complex, beautiful ways that those of us who are sighted cannot understand. Taylor is a 10-year-old little girl whose hair is really starting to grow now - darker hair that replaces the long golden locks that she lost when she underwent harrowing brain surgery on the other end of the continent just over a year ago. She is a little girl who sometimes has trouble stringing together sentences but to whom we should always listen so as to catch all the parts of the story she has to tell.

So here I sit for the nth time, 25 months after starting this site and this blog, searching for meaning in the blank Web template that awaits my words - our words. If you are reading this now, regardless of who you are, how you have touched our efforts or how you have been touched by stories like Taylor's, you have helped give meaning to the pages that will follow, ink to fill our pens and belief to fill our hearts.