Visit the sites below to learn more about Batten disease and our partners, or meet other affected children who, like Taylor, are fighting for their lives.*

Reference

• Batten Disease Support and Research Association (BDSRA)
• National Institute of Neurological Disorders and Stroke (NINDS)
• National Institutes of Health (NIH)
• The National Organization for Rare Disorders (NORD)
• Sandra Hofmann, MD, PhD
• The Davidson Laboratory
• Mark S. Sands, PhD
• Mendelian Inheritance in Man Database

Partners

• Kakkis EveryLife Foundation/CureTheProcess Campaign 

 Other Batten Disease Charities and Family Sites

• a fight for brandon
• Our Boys’ Journey
• Drew’s Hope
• Hayden’s Hope
• Garrett’s Wings
• Blake’s Purpose
• Our Promise to Nicholas Foundation
• Nathan’s Battle
• Beyond Batten Disease Foundation

 *Taylor’s Tale not does not maintain the content found on these sites.