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A frequently updated glimpse into our world, forever changed by Batten Disease.

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Thursday, February 22, 2007

Talent Show, etc.

I'm sorry it's been so long since my last post; it's amazing how much time flies!

Last Thursday, T was in the talent show at Fletcher. We were a little nervous, but she did beautifully! 100_1014.JPGShe and three other girls danced to a popular song--I didn't recognize it, so I must be out of the loop--but they were great! It warms my heart whenever T is able to be a "normal" little girl. She deserves that much, and it made her so incredibly happy.

There is so much to be done. If you have ever lost something, known it didn't leave the house and ransacked the place looking for it, imagine the feeling you got then multiplied ten thousand times. I just know there's a cure out there somewhere. I need to find it, though, and I need to find it quickly. I want to hold onto every piece of T that makes her her, and I try not to think about what will happen if we don't find the answer.

If you are reading this, thank you for visiting our site! Please join the search team and help us find our cure. We need you!
 
8:52 pm est


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