Taylor's Tale was founded in honor of Taylor King of Charlotte, NC, who was diagnosed with infantile Batten disease in 2006 at age 7. Taylor's family and friends refused to accept a life without hope for people fighting Batten disease and other rare diseases. Rather than take defeat, they embarked upon a journey to save not only Taylor's life, but the lives of millions faced with a tragic illness without a single approved treatment.
Taylor's Tale raises funds for Batten disease research and promotes public awareness of Batten disease. We also serve as advocates for the greater rare disease community, which includes 30 million Americans and 350 million people worldwide. With your help, we can write the happy ending to Taylor's Tale.
Feb. 15, 2014 - Taylor's Tale joins international commemoration of Rare Disease Day 2014, plans visit to Washington and candlelight vigil in Charlotte Learn more
Feb. 8, 2014 - Raleigh piano students and teachers raise more than $3,000 for Taylor's Tale at the sixth annual playathon Learn more
Feb. 4, 2014 - Taylor's Tale co-founder's blindfolded half marathon featured in Runner's World, the world's largest running magazine Learn more